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Author Topic: MesoTroniK Donation Drive  (Read 84433 times)

King Alfonzo

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Re: MesoTroniK Donation Drive
« Reply #75 on: May 08, 2023, 03:04:26 AM »

Due to living overseas (and a busted attempt to make a paypal account that I can't fix) I'm unable to send in money for the donation drive, despite wanting to. I've spoken to Meso multiple times in the past, and have been unable to help shoulder his burdens. I've been pretty frustrated about it for a while. However, due to the kind generosity of Network Pesci (and his better geographical position) I was able to organise some assistance for the drive.

Even if you can't help directly, I strongly encourage others to encourage others to help - you're not alone in this, there will always be people that are willing to help, you just need to find them.

basileus

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Re: MesoTroniK Donation Drive
« Reply #76 on: May 08, 2023, 11:45:49 AM »

Meso, you have signed up for Medicaid, right?
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Midnight Kitsune

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Re: MesoTroniK Donation Drive
« Reply #77 on: May 08, 2023, 12:25:04 PM »

Meso, you have signed up for Medicaid, right?
No he hasn't and has been unable to as well due to him being above the so called "poverty line" that is set so low it isn't even usable for most... And what is worse is that in some states, I'm not sure about Arizona, it is an all or nothing thing... I'm speaking from my experience from when I was helping and living with my father when he had cancer so I know what he is going through.

There is more info on the GoFundMe page:
Spoiler
"Additional information and material:

Why not ask the government for help? I've tried and we were shot down for making "too much" money as in just above the poverty threshold for a two-person household. Apparently, the state of Arizona and the Feds think you can live on just meager Social Security and some inconsistent income from commission work while also taking care of a dementia patient and the enormous cost of living that incurs. Because surely the cost of living is the same for everyone right? "
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Help out MesoTroniK, a modder in need

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Erlkonig

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Re: MesoTroniK Donation Drive
« Reply #78 on: March 05, 2024, 06:56:08 PM »

Finally got around to helping with what I could, late as it may be. Hang in there buddy!
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MesoTroniK

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Re: MesoTroniK Donation Drive
« Reply #79 on: June 24, 2024, 01:29:50 PM »

Sigh, time is a flat circle. Gonna ramble a bit, and frankly ask for help as things are currently so beyond bad right now to an extent never before seen... And I've spent about a week before doing this, thinking of any way out. Talking to every person I know about prepaid work possibilities, shilling myself extra hard on game dev Discord and Telegram channels for said possibilities etc etc... And no dice really beyond the norm came of it.

Put in the shortest possible manner... The ceiling is going to collapse during the monsoon season if I do not figure SOMETHING out, details in the GFM update. I don't see a way to stop this from happening on my own. Given that I am doing unpaid dementia caretaking alone going on four years, something that should be done by two, ideally three people... To say that it is unworkable to deal with calamities of this nature is a massive understatement. Like I save what I can, but with her ongoing dental work and various other emergencies, there just is no way to deal with more than one calamity at once. And I knew the roof needed work, for a long time and has been mentioned as such. But I always assumed I could make it happen on my own. But I just... Can't. If the level of care needed and medical expenditures remained a flat figure? Yea it would have. But that isn't the nature of dementia, and ever degrading health. The void is essentially infinite in depth, until it ends which won't be any time soon most likely.

Anyways, I am sorry I am directly asking for help. But at this point I feel like I have no choice and put off doing so for as long as possible, in the perhaps quixotic dream of hope that it wouldn't be needed. I'm really thankful to everyone who chipped in during the previous updates, for every contribution helps get us through this Hellish situation of dementia caretaking all alone.

https://www.gofundme.com/f/help-me-care-for-my-senior-mother-and-pay-bills
Current events update (don't see a way to link to the update directly). Also, copy pasted the update below.

Spoiler
Hello again friends. Another update today, to be blunt... To talk about an emergency that requires help.

As I mentioned in prior updates, the roof needs repairs and coating and it can no longer be put off despite my attempts to make it happen all on my own. The last time there was an absolutely huge rainstorm here, where the house itself was almost flooded by the streets and yards filling with water. It created a entirely new series of leaks and greatly worsened an old damaged area as seen in the pictures, which is even worse than it appears in the pics. The ceiling is bowing downward a significant fraction of an inch, as shown in the second photo. It isn't the same leak there from the past (a lesser damaged version is shown earlier in the GFM), but I am 99% sure this is where a roof deck board terminates and water simply flowed to that same spot from a different location. To put it in the shortest possible manner: The upcoming monsoon season is probably going to cause the ceiling in this house to collapse in at least three areas and there is nothing I can do about it. And if that happens not only would the roof work still need to happen, but the cost of ceiling repairs would be so enormous that it might as well be on the moon. Also worth noting is that the areas were tested for mold (there is none), and the roof deck boards are not rotted out. Thank goodness for the desert here!

The recent cost estimate I got for the significant repairs required is four grand. It would include nailing down loose shingles, putting sealant around all flashings and roof penetrations, replacing one rusted out galvanized steel flashing that is likely 80 years old, coating the entire roof with three coats of rolled on acrylic elastomer (think of it as a thick rubber layer), and repairing the worst-damaged ceiling area. The second to last point is a big deal since it would in effect freeze the roof in time after the repairs. With a warrantied time period of five years, but a service life of seven to ten because it would be three coats (because of the Arizona sun) not the usual two. The last point is also a huge deal since that area of the ceiling I think will fall in the foreseeable future even if the leaks stop. The other two areas that are compromised I think will remain suspended indefinitely as long as the leaks stop and no new ones form. Yes this is a significant amount of money I am asking for, but what else can I do? Everyone bends to reality when existence is on the line and no alternatives exist... So here I am, once again, asking for help and this time with a very specific and significant issue. Also, any extra above the four thousand of this update post will go to other things mentioned in the past like wheelchair ramps (needed soon!) etc etc.

The thing that really hurts, is that not even all that long ago I would do some of these repairs myself. But my old knee injury (torn meniscus) just keeps getting worse and is greatly aggravated by the significant and ever increasing physical assistance my mother needs. The last time I climbed on the roof my knee gave out and I almost fell off. That was the end of that, as doing that ever again is a Very Bad Idea.

Finally, why am I asking for something so specific now? Because as said before I am running out of time before the monsoon season. And I kept thinking I could clutch this on my own. I tried to set aside a bit of money every month to save for this. But she keeps having dental issues and other lesser emergencies and the amount of freelance remote work time I can put in is very limited and only decreases over time, because I am doing an unpaid caretaking job that should be done by two, ideally three people, ALONE and have done so for four years now.

Anyways it is what it is, and if anyone can help... It would be appreciated beyond mere words. This current situation is the worst things have been here so far to a large degree and this is saying a lot, and if not resolved very soon... Will become practically impossible to deal with.

   
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DaddyO

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Re: MesoTroniK Donation Drive
« Reply #80 on: October 03, 2024, 08:19:32 PM »

Hello Zeke! I have read this entire post and the GoFundMe page and life for you sir sucks! Plain and simple. I have not had the unfortunate luck you have had to deal with family in dire health conditions, but my sole surviving uncle who lives in Payson AZ and who is 76 is rapidly going down hill and he lives by himself, so I commute from Phoenix to visit and assist him in trying to keep things clean and organized at his home.  So, as I said previously, I have not had to endure the trials you are attending to now.

I have read all the comments others have posted and the advice that some forum members have contributed to you plight. I am glad you got the roof and AC done as I know in Phoenix that is a more of life or death than most people realize especially during June to October. With this said, I had a question that I don't think anyone asked you or that you provided information on. The question is the house you live in, I am assuming here, is in your mothers name or yours? Because I know if you are replacing things like AC and roof, that you are not renting as that would be the owners responsibility and if you were behind on payments I am sure you would be on the streets knowing the renters that are just killing people here with extreme high rental costs.
Arizona doesn't require homeowners to purchase home insurance. However, if you have a mortgage on your property, the lender can require you to have insurance coverage that is at least equal to the amount you owe on the loan. By chance do you or your mother have insurance on that home?

I know back in July we had a very windy monsoon come through my area in the area of Cactus and 43rd Ave and I lost part of my wood fence. I called my insurance to find out the costs and I ended up splitting the difference with my neighbor instead of using insurance because it was overall cheaper, but I wanted to ask you if insurance was on the house because you could have used that to get it done by paying only the deductible even if it might be 1k to 2k off the top, you would have saved money.  That is all I had on this subject because it was my first thought when reading about things, which includes inside the house as well, because in my home I had water damage in the walls next to our master bathroom shower and insurance paid for it after I met my deductible and it was a life saver for us. 

Now on the condition of your mother and I have read the information you provided and I must say bravo for being a human being and loving son.  Even though you have health concerns that need attention you care for your mother who needs its most. Sacrafice of love and humility sir. You will be repaid for this in the end mark my words and yes I believe and have faith of a higher power I cannot deny it. You are blessed and things will get better for you. I know you have probably struggled with the idea of giving up and the possibility of putting mom in a home. My feelings are mixed on this because it is a decision I would not want to make.  My wife had to make that decision with her parents even though there were 5 other siblings the amount of issues health wise were beyond what any of us could manage, so both in laws were put in a home.  Just stating the last resort because that is what it is. I had to do it for my grandparents and my father who eventually walked out the door of the VA and into the street to die as he refused to go back to the home.  Yeah it is a hard hard hard choice.  I will continue to pray for you and mom during this time.

Lastly because this has been rather long winded and I went off topic a few times, I will be donating to your fund. I will do what I can to support your situation. God bless you Zeke and your mother for the love you both have each other. Believe me when I tell you, mom knows what you are doing regardless of the dementia and not able to speak, she will know what you have done for her during this time. Take care.
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MesoTroniK

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Re: MesoTroniK Donation Drive
« Reply #81 on: October 07, 2024, 12:48:17 PM »

Hello DaddyO, thank you for the very thoughtful post. My apologies for the late reply, and it is is going to be more terse than I would prefer but I am trying to sneak this in-between a lot of chaos and goings-on.

The home is paid off thankfully, but sadly not insured and has been this way for a long time.

Sorry to hear that storm damaged your home. That same storm also caused more roof damage here.

Enter through the narrow gate. For wide is the gate and broad is the road that leads to destruction, and many enter.
I appreciate the kind words. Unfortunately putting her in a home is not an option. And for those that have the option of a care-home? Yea I understand it is still an extremely hard choice, especially with all the horror stories of neglect and abuse.
I'm sorry for what happened to your father as well. The VA is unfortunately known for being less than helpful at times, to put it politely...

I truly appreciate it my friend. And yea I agree there is *some* spark and understanding there. But how much? Truly no one knows. But I can watch her eye focus and discern what catches her attention. And while she cannot speak, she sometimes "chuffs" at funny things I say, or smiles.

MesoTroniK

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Re: MesoTroniK Donation Drive
« Reply #82 on: February 19, 2025, 02:51:01 PM »

https://www.gofundme.com/f/help-me-care-for-my-senior-mother-and-pay-bills
Current events update (don't see a way to link to the update directly). Also, copy pasted the update below.


She passed away... Hello again friends, can't get much more direct than that. Aspiration pneumonia struck fast and unexpectedly. The hospital could not save her and she departed peacefully in a drug comforted sleep in a hospice ward. But I need help once again, because everything that followed has absolutely crushed me, doubly so when combined with everything of the past. I'm updating the fundraiser for anyone who wishes to help with medical and all other expenses past and present described previously and below.

This has hit me very hard, in many ways. After caring for her since 2019 and evidence from other past family members supporting this, I believed that she would likely live significantly longer. Despite my efforts to safely feed and hydrate her, she still aspirated a tiny sip of water which quickly snowballed into the fatal event. I did my very best, digging myself into a financial hole while sacrificing my own health, but my best wasn't good enough. And for me, my mother’s death is far from the end: the debts are due. I drained every bank account and maxed every credit card while caring for her entirely on my own.

I am going to summarize various aspects in bullet points, and expound where needed later. The immediate problems, with serious consequences if not solved soon, are as follows:
• Her medical bills have yet to arrive and they will soon. But I will be responsible for them and they will be an estimated four figures after Medicare decides how much they will pay. That amount is extrapolated from her hospital bills from the past.
• I need to pay her final income tax return. This is insane, because in effect she owes the same amount, but without her Social Security payments coming in anymore that I would previously use to pay for most of it. Estimated amount is in the low four figures.
• She still has outstanding debts that I need to take care of. The majority has been paid off, but I still need to pay a few thousand dollars more.
• I need to pay my income taxes this year. After all the increased expenses from what happened, plus a loss of one of the sources of income for this household, the money I had set aside to pay them has evaporated. There is still the desperate option of adding the outstanding taxes to my IRS installment plan, which is already difficult to pay—even more so if I add another tax year onto it.

Medium-term things:
• The guy I was going to have coat the roof... Is no longer available. The money set aside for this, was used to sort out some end-of-life expenses. Still, I need to replace the roof now, because no company offers the sort of coating I was looking at to eke more years out of it. And the aforementioned “roofing handyman” was the only guy around I could find who would do it. The monthly expense that would be needed to finance a new roof is impossible for me as things stand.
• I am pretty sure I figured out the cause of my heart palpitations and cardiac arrhythmia. I had a home sleep study done and it was determined that I have severe obstructive sleep apnea with 30 events that night, blood oxygen dipping to 83%, and a pulse that topped out at 102. I *need* an APAP (automatic positive airway pressure) machine, which would cost about $1000 after the dust settles. Without one, it is not a question of *if*, but rather *when* my symptoms will worsen to the point of emergency room visits or death.
https://www.webmd.com/sleep-disorders/sleep-apnea/sleep-apnea-conditions
• I need to pay property taxes (approximately $2100 a year), which given all the other expenses, is very hard right now.
• I still have my old medical debt and other debts. I have plans to handle these, provided that I have help with dealing with the new problems I’ve already mentioned above.

You might ask, "Why don't you do payment plans and loans on the new expenses?" The answer is simple: my monthly expenses are already basically untenable; adding to it would send me into a financial death spiral. It’s also difficult to even *find* such loans, given how far my credit rating has torpedoed through five straight years of solo caretaking. Bankruptcy isn't an option either, as the roof would go un-replaced for many years and take the rest of the house with it.

... I'm sorry I'm once again asking for help, and so much. But I don't know what else to do. After years of bearing this situation alone. All of these additional expenses being dumped on me all at once are impossible to deal with.

I didn’t get much sleep while taking care of my mother, and unfortunately that hasn’t changed since her passing. Most of the time spent on caretaking, is instead now spent working trying to fix everything. And it’s nowhere near enough. With the revelation of severe obstructive sleep apnea which, now that I recognize the symptoms of it, I think I have had it for a decade or more! It is no wonder I am developing heart disease, especially combined with barely sleeping for years on end! I am not eating well since she passed either. Spending basically all of my money in an attempt to pay for everything while eating a below-poverty diet for a while now... I have lost ten pounds in a month.

Regarding the roof, the ceiling in the worst spot isn't at risk of falling anymore because I put a jack in place. But every rainstorm the ceiling damage worsens, and the eventual repair cost after a roof replacement will just keep ballooning. In addition, the lesser damaged areas will eventually be fall risks as well. At this point, unless my GoFundMe donations increase to a frankly unrealistic degree, my only real option is financing. I’d be looking at monthly payments in excess of $300 per month. I simply can’t afford this. If you would like to *truly* help with the roof, and with me putting my life back together in general, the best thing you can do is to join my Patreon:
https://www.patreon.com/mesotronik
Any amount contributed there (monthly), especially long-term donations, would give me far more financial stability than a lump sum. I could never possibly thank you enough if you decide to make such a commitment. It is going to take years to put my life back together and keep this house from falling apart. I lost so much time and it has been so long, and so many terrible things happened along with my overall health worsening. And I am effectively unemployable in the “conventional” sense and have been for a long time, though I do pretty well with my freelancing and my best move is to stay the course.

I pray for everyone in this world, that you do not have to do it alone. Caring for someone with a condition which slowly erases every aspect of your being, while at the same time trying to make a living and avoiding massive debt. Also, if you ever need to care for someone with Alzheimer's / dementia and want advice, feel free to ask me anything. It is the least I could do to help lower the learning curve for anyone involved with such a wretched situation.

If anyone can help me with the brunt of the new vital one-time expenses roughly represented by the goal amount of this fundraiser? I would be forever thankful. To say it would be LIFE-SAVING is not an exaggeration. The same goes for anyone who commits to reoccurring contributions via my Patreon. Any amount past the GoFundMe goal will be put directly towards a new roof, reducing the amount that would be financed.

Seriously, no words I could convey would ever be enough.

mark.sucka

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Re: MesoTroniK Donation Drive
« Reply #83 on: April 25, 2025, 10:03:23 AM »

• Her medical bills have yet to arrive and they will soon. But I will be responsible for them and they will be an estimated four figures after Medicare decides how much they will pay. That amount is extrapolated from her hospital bills from the past.

• She still has outstanding debts that I need to take care of. The majority has been paid off, but I still need to pay a few thousand dollars more.

Given your financial situation, I'd really recommend investing a few hours speaking with a local legal aid / debt relief non-profit.  Typically when someone dies, so too does their debts.  Obviously not income taxes due or property taxes due, but medical debt & credit card debt is generally not something that is passed along to next of kin.  If you mom's estate has been wiped out, which it likely would after years of medical treatment, creditors are out of luck.  So unless these debts are actually in your name and not your mom's, it's likely you aren't legally responsible for payment.

Rather than blindly paying out bills in the $thousands+, check to see if those debts are actually something that you're obligated to pay.  Debt collectors will use scummy tactics like making you think the dead will be restless in the afterlife if their outstanding final bills aren't settled by their kids, but I'd argue your mom would rest easier knowing you aren't sacrificing your mental & physical health by paying like $10k you don't have to financiers to honor her final wishes or whatever BS they try to spin.

Only pay the debts you are legally required to.  Income taxes, property taxes, etc.  Personal debts of your mom can likely be dismissed, which a debt counselor or legal aid will be able to help you identify.  Hopefully that advice saves you thousands and your situation is made that much better.
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MesoTroniK

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Re: MesoTroniK Donation Drive
« Reply #84 on: April 25, 2025, 06:34:17 PM »

Good evening Mark, and I appreciate the advice. However, broadly speaking?

I have a lawyer and all options have been explored thoroughly. Any form of debt relief is not possible, as is her debts dying / being forgiven. Why? Because of the Trust and what is contained within it. Therefore not taking care of her obligations so to speak? Saying the consequences would be dire would be a massive understatement. I hope you understand, and I regret overlooking mentioning the trust as part of the original update.
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